{"id":837262,"date":"2025-03-27T19:12:54","date_gmt":"2025-03-28T00:12:54","guid":{"rendered":"https:\/\/newsycanuse.com\/index.php\/2025\/03\/27\/many-medical-schools-lacking-crucial-education-on-autism\/"},"modified":"2025-03-27T19:12:54","modified_gmt":"2025-03-28T00:12:54","slug":"many-medical-schools-lacking-crucial-education-on-autism","status":"publish","type":"post","link":"https:\/\/newsycanuse.com\/index.php\/2025\/03\/27\/many-medical-schools-lacking-crucial-education-on-autism\/","title":{"rendered":"Many Medical Schools Lacking Crucial Education on Autism"},"content":{"rendered":"<p>Business News <\/p>\n<div check-ads-type=\"true\">\n<p>About 5 years ago, a group of Harvard medical students went to instructor Dorothy W. Tolchin, MD, with an idea: Train students to graduate with the skills, perspective, and humility to take good care of patients with disabilities of all types, including autism, which affects <a href=\"https:\/\/www.cdc.gov\/autism\/data-research\/index.html\">1 in 36 children<\/a>.<\/p>\n<p>Together, they embarked on a project to integrate disability education within Harvard Medical School, Boston. Today, Harvard is in its fifth year of this embedded curriculum; Tolchin is the inaugural director of disability education at Harvard Medical School.<\/p>\n<p>A key component of Harvard\u2019s program is its partnership with <a href=\"https:\/\/thearcofmass.org\/ohc\/\">Operation House Call<\/a> (OHC) of The Arc of Massachusetts in Waltham, Massachusetts. OHC is a unique initiative that equips medical students to deliver compassionate, competent care to individuals with autism and intellectual and developmental disabilities. The program combines classroom learning with real-world experiences. It is currently implemented in all Massachusetts medical schools and is one of only a few like it in the United States.<\/p>\n<p>Despite the need for specialized training, no accreditation standards currently mandate <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC10011116\/\">autism education<\/a> in medical school curricula. A small survey <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC10961132\/\">published last year<\/a> found that only 16% of medical students had received formal training in neurodivergence; 97% expressed a desire for more.<\/p>\n<figure contenteditable=\"false\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/img.medscapestatic.com\/vim\/live\/professional_assets\/medscape\/images\/thumbnail_library\/ht_250324_maura_sullivan_120x156.jpg\" alt=\"Business News photo of Maura Sullivan\" height=\"156\" width=\"120\" data-asset-description=\"Maura Sullivan\" data-asset-id=\"5a42b152-e877-44ae-b52b-da3aa3fd4ad2\" data-asset-title=\"Business News ht_250324_maura_sullivan_120x156.jpg\" data-creditline=\"The Arc of Massachusetts\" data-source=\"N\/A\" data-keywords data-path=\"\/vim\/live\/professional_assets\/medscape\/images\/thumbnail_library\/ht_250324_maura_sullivan_120x156.jpg\" data-asset-url=\"https:\/\/img.medscapestatic.com\/vim\/live\/professional_assets\/medscape\/images\/thumbnail_library\/ht_250324_maura_sullivan_120x156.jpg\" data-height=\"156\" data-width=\"120\" role=\"textbox\" tabindex=\"-1\" contenteditable=\"true\"><figcaption data-placeholder=\"Enter image Caption\">Maura Sullivan<\/figcaption><\/figure>\n<p>Too often, medical students graduate with little education and understanding of proper care for people with autism, explains Maura Sullivan, CEO of <a href=\"https:\/\/thearcofmass.org\/\">The Arc of Massachusetts<\/a>; it\u2019s a gap that contributes to medical access issues for patients with autism, an increase in health disparities, and more.<\/p>\n<p>In this piece, <em>Medscape Medical News<\/em> explores the state of autism education, ongoing efforts to enhance training, and how medical students can advocate for change.<\/p>\n<h2>Business News <strong>The State of Autism Education in Medical Schools<\/strong><\/h2>\n<p>\u201c<a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/28187005\/\">A little over half<\/a> of schools have at least some elements of disability education, but it\u2019s not necessarily autism education,\u201d Tolchin said.<\/p>\n<p>Sometimes, autism education is limited to one or two sessions; usually, it is focused on diagnosis and recognizing signs or symptoms, and there\u2019s much less emphasis on the patient and family perspective, said Michael Zhu Chen, an MD-PhD student at Harvard Medical School.<\/p>\n<p>\u201cStudents graduate with a general understanding of patient care but without the necessary skills to provide a comfortable clinical environment, ask questions, and engage people across the neurodiversity spectrum,\u201d Tolchin said.<\/p>\n<p>Traditional medical school education also tends to lack a curriculum aimed at the continuation of care. \u201cIn many cases, autism is diagnosed in childhood, but obviously, there are adults with autism. It\u2019s not like they all of a sudden aren\u2019t people that physicians are caring for anymore,\u201d Chen said.<\/p>\n<p>According to Tolchin, without set curriculum requirements in medical schools, schools tend to provide education when there is an available champion for advocacy and\/or available resources.<\/p>\n<p>Research in <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC8883251\/\"><em>BMJ Open<\/em><\/a> found that only 25% of primary healthcare providers reported high confidence in communicating with adult patients with autism or identifying and making necessary accommodations.<\/p>\n<h2>Business News <strong>The Repercussions of an Underprepared Physician Workforce<\/strong><\/h2>\n<p>When physicians in training don\u2019t receive adequate education about caring for patients with autism, there\u2019s a wide range of consequences.<\/p>\n<p>For one, there are access issues for patients. In <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/33523739\/\">a survey<\/a> of 714 US physicians, only 40% felt equipped to treat patients with autism and intellectual and developmental disabilities. \u201cBecause physicians don\u2019t feel competent, they are not willing to treat,\u201d Sullivan said. \u201cThese attitudes can lead to fear or concerns around providing care for these patients.\u201d<\/p>\n<p>The more pernicious flip side to that is that physicians will take patients with autism but won\u2019t be able to provide proper care \u2014 something that too often results in diagnostic overshadowing \u2014 a bias that exists when a provider attributes someone\u2019s symptoms to a preexisting condition, in this case, autism. For example, if a patient with autism goes to the emergency room with pain, a doctor might attribute their pain to their autism rather than properly looking into an underlying issue. This can lead to misdiagnosis, underdiagnosis, or inadequate treatment.<\/p>\n<p>Greater health disparities among patients with autism also stem from providers\u2019 inability to effectively communicate with individuals who are nonspeaking or have different communication needs, Sullivan said. Tolchin said patients might not be involved in making decisions that they could reasonably make for themselves. \u201cAssumptions can be made.\u201d<\/p>\n<p>All in all, there is a \u201cmissed opportunity\u201d for medical schools to provide proper education, said Tolchin.<\/p>\n<h2>Business News <strong>A Nationwide Model<\/strong><\/h2>\n<p>Entering medical school, Chen said he had some awareness of autism but that he \u201cnever really fully appreciated how it affects life in different ways and the role that physicians can have in supporting families and patients through that journey.\u201d<\/p>\n<p>OHC not only introduces students to autism and intellectual and developmental disabilities but also provides critical experiential learning, with visits to family homes, improving confidence among students, Sullivan said.<\/p>\n<p>Typically, parent educators and patients with autism speak to medical students about their experiences inside and outside medical settings. \u201cWe center the people with autism themselves,\u201d Tolchin said. \u201cThey explain what it is like to get healthcare, what is hard, and who their good clinicians are.\u201d<\/p>\n<p>Students learn about the physician\u2019s role as an advocate \u2014 and how to meaningfully engage with others on a patient\u2019s care team, such as a social worker, a speech pathologist, or parents. They also learn about specific accommodations that may be necessary for modifying a clinical exam or helping a patient adjust to a medical setting \u2014 something that can provoke anxiety.<\/p>\n<p>Students visit the homes of patients with autism and receive feedback after visits.\u00a0<\/p>\n<p>\u201cThe home setting is so important,\u201d Tolchin said. \u201cStudents can see people\u2019s individual lives beyond just what they would read in a textbook or be taught on a slide.\u201d<\/p>\n<p>Chen said OHC helped him realize the power of language.<\/p>\n<p>\u201cIt\u2019s not just about the medications you prescribe or the diagnosis you give; it\u2019s how you talk to patients and families,\u201d he said. He recalls the mother of a family he visited recounting the story of her son\u2019s diagnosis some 15 years earlier.<\/p>\n<p>\u201cShe still remembered the exact words that the physician had used to deliver the news: \u2018Oh, I\u2019m so, so, so, sorry. Your child has autism,\u2019\u201d Chen said. \u201cShe felt extremely hurt and traumatized by the way the news was delivered.\u201d<\/p>\n<p>Lived experience training helps students gain an understanding of people across the autism spectrum, Sullivan said. \u201cSometimes you meet one person with autism, and you think you understand, but if you meet one person with autism, you\u2019ve met one person.\u201d She said, \u201cMany medical school students come to me and say, \u2018I\u2019m so glad for this class because I had no idea how to treat a patient with autism\u2019 or \u2018I had never worked as a patient with autism.\u2019\u201d<\/p>\n<p>Chen said that without his training, he\u2019d feel out of his depth; \u201cI probably wouldn\u2019t provide the best care that I could,\u201d he said. \u201cCommunication, for one, is a lesson that extends well beyond autism or disability. It is important for any area of medicine.\u201d<\/p>\n<h2>Business News <strong>Continued Change<\/strong><\/h2>\n<p>In recent years, there has been increased attention to autism education in medical schools, but too often, advancement occurs in silos. There is a need for a \u201cstandardized curriculum that is part of any graduate medical education, including residencies or fellowships, that includes specific training on intellectual and developmental disabilities and autism and specifically includes learning from those individuals with lived experience,\u201d Sullivan said.\u00a0<\/p>\n<p>There are barriers to that.<\/p>\n<p>\u201cMedical school curricula are packed,\u201d Tolchin said. \u201cThere are a lot of needs in our healthcare system and very thoughtful medical educators who recognize the need to teach a range of different topics within the curriculum. This is not the only one.\u201d<\/p>\n<p>Yet, she\u2019s optimistic that standardization is coming. In its absence, maintaining clinical humility for all patients is key, Tolchin said.<\/p>\n<p>\u201cMake no assumptions about what your patients can or cannot do, what they can or cannot communicate, and start with the intention of understanding how your patients feel, what they need, and how you can engage them in their care. You\u2019re not going to know everything about any individual\u2019s specific autism experience, but you can learn by asking questions to inform your care.\u201d<\/p>\n<p>Medical students should also know that their voices matter.<\/p>\n<p>\u201cStudents can play a very big role in driving change in their institutions,\u201d Tolchin said. Sullivan said that she struggled to get OHC into one of the last medical schools in Massachusetts, noting that it was a student\u2019s advocacy that made it happen.<\/p>\n<p>\u201cNow, that is one of our strongest programs \u2014 and it all started with a medical student,\u201d she said.<\/p>\n<\/div>\n<p><a href=\"https:\/\/www.medscape.com\/viewarticle\/many-medical-schools-lacking-crucial-education-autism-2025a100070m\" class=\"button purchase\" rel=\"nofollow noopener\" target=\"_blank\">Read More<\/a><br \/>\n Blythe Block<\/p>\n","protected":false},"excerpt":{"rendered":"<p>About 5 years ago, a group of Harvard medical students went to instructor Dorothy W. Tolchin, MD, with an idea: Train students to graduate with the skills, perspective, and humility to take good care of patients with disabilities of all types, including autism, which affects 1 in 36 children. Together, they embarked on a project<\/p>\n","protected":false},"author":1,"featured_media":837263,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[35067,3850,307],"tags":[],"class_list":["post-837262","post","type-post","status-publish","format-standard","has-post-thumbnail","category-heath","category-medical","category-schools"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/posts\/837262","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/comments?post=837262"}],"version-history":[{"count":0,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/posts\/837262\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/media\/837263"}],"wp:attachment":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/media?parent=837262"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/categories?post=837262"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/tags?post=837262"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}