{"id":626532,"date":"2023-04-07T09:49:20","date_gmt":"2023-04-07T14:49:20","guid":{"rendered":"https:\/\/news.sellorbuyhomefast.com\/index.php\/2023\/04\/07\/high-quality-data-enables-medical-research\/"},"modified":"2023-04-07T09:49:20","modified_gmt":"2023-04-07T14:49:20","slug":"high-quality-data-enables-medical-research","status":"publish","type":"post","link":"https:\/\/newsycanuse.com\/index.php\/2023\/04\/07\/high-quality-data-enables-medical-research\/","title":{"rendered":"High-quality data enables medical research"},"content":{"rendered":"<div>\n<h2 id=\"39295-val-contentList\">High-quality data enables medical research<\/h2>\n<\/div>\n<div>\n<p>These complex questions, usually the province of medical research, became concrete seemingly overnight. While amateur epidemiologists scoured the internet for statistics to support their personal beliefs, professionals often appeared on the nightly news, even if just to say, \u201cWe don\u2019t have good enough data.\u201d<\/p>\n<\/div>\n<div>\n<p>While our focus on the pandemic has now subsided, our health data quality problems remain. We\u2019re swimming in health data\u2014by some estimates, one-third of all data generated in the world is related to health and health care, and that amount increases more than 30% every year.<\/p>\n<p>With all that data, then, why can\u2019t we answer our most pressing heath questions? Which of the five top diabetes drugs (if any) will be best for me? Will back surgery be more effective than physical therapy for my spine? What are the chances that I will need chemotherapy in addition to radiation to make my tumor go away?<\/p>\n<h3>EHRs have become ubiquitous<\/h3>\n<p>Electronic health records (EHRs) have become pervasive in the U.S., largely thanks to a multi-billion-dollar federal initiative that made interoperable EHRs a national goal. The 2009 HITECH Act provided incentives for healthcare providers who computerized and penalties for those who did not. In addition to the improved patient care this would enable, the millions of digitized health records would create opportunities to transform medical research.<\/p>\n<figure><img decoding=\"async\" src=\"https:\/\/wp.technologyreview.com\/wp-content\/uploads\/2023\/04\/MIT_IMO_EHSChartV2.png?w=3000\" alt><\/figure>\n<p>\u201cPrior to EHRs, clinical research was all on paper,\u201d says Dale Sanders, chief strategy officer at Intelligent Medical Objects (IMO), a healthcare data enablement company that offers clinical terminology and tooling to improve the quality of medical data. \u201cYou would transfer that paper-based data to spreadsheets and do your own data analysis in a very small local environment. It didn\u2019t give a broader view of a patient\u2019s life, and it certainly didn\u2019t enable any kind of broader population analysis.\u201d<\/p>\n<p>Theoretically, EHRs should make it possible to aggregate, analyze, and search through information collected from millions of patients to discover patterns that aren\u2019t evident on a smaller scale\u2014as well as to track a single patient\u2019s health status methodically over time. Imagine being able to quickly compare and analyze the cases of the few thousand people who have a particular rare condition or to follow users of a certain drug over a set period of time to observe long-term side effects that weren\u2019t obvious in trials.<\/p>\n<figure><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/wp.technologyreview.com\/wp-content\/uploads\/2023\/04\/MIT_IMO_Quote_JohnLee.png?w=3000\" alt width=\"1500\" height=\"912\"><\/figure>\n<p>Of course, it\u2019s not that easy. \u201cThere\u2019s a lot of raw data [in EHRs] and it\u2019s very, very dirty,\u201d explains John Lee, MD, an emergency physician and clinical informaticist who has served as chief medical information officer for several health systems. \u201cSome of it isn\u2019t accurate, and the stuff that is accurate isn\u2019t packaged up in a way that\u2019s usable and scalable. There is an opportunity tantalizingly at our fingertips if we could get out of our own way.\u201d<\/p>\n<p>Sanders concurs. \u201cCovid made us all realize that the data that we\u2019re collecting with EHRs is not very good for clinical research, or for reacting to pandemics and public health challenges. It\u2019s time to evolve the way we\u2019re using them.\u201d<\/p>\n<p><em><a href=\"https:\/\/forms.technologyreview.com\/insights-imo-high-quality-data-enables-medical-research-report\/\" data-type=\"URL\" data-id=\"https:\/\/forms.technologyreview.com\/insights-imo-high-quality-data-enables-medical-research-report\/\" target=\"_blank\" rel=\"noopener\">Download the report<\/a>.<\/em><\/p>\n<p><em>This content was produced by Insights, the custom content arm of MIT Technology Review. It was not written by MIT Technology Review\u2019s editorial staff.<\/em><svg viewBox=\"0 0 1091.84 1091.84\"><polygon fill=\"#6d6e71\" points=\"363.95 0 363.95 1091.84 727.89 1091.84 727.89 363.95 363.95 0\" \/><polygon fill=\"#939598\" points=\"363.95 0 728.24 365.18 1091.84 364.13 1091.84 0 363.95 0\" \/><polygon fill=\"#414042\" points=\"0 0 0 0.03 0 363.95 363.95 363.95 363.95 0 0 0\" \/><\/svg> <\/p>\n<\/div>\n<p><a href=\"https:\/\/www.technologyreview.com\/2023\/04\/06\/1070902\/high-quality-data-enables-medical-research\/\" class=\"button purchase\" rel=\"nofollow noopener\" target=\"_blank\">Read More<\/a><br \/>\n MIT Technology Review Insights<\/p>\n","protected":false},"excerpt":{"rendered":"<p>High-quality data enables medical researchThese complex questions, usually the province of medical research, became concrete seemingly overnight. While amateur epidemiologists scoured the internet for statistics to support their personal beliefs, professionals often appeared on the nightly news, even if just to say, \u201cWe don\u2019t have good enough data.\u201dWhile our focus on the pandemic has now<\/p>\n","protected":false},"author":1,"featured_media":626533,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[37732,58173,46],"tags":[],"class_list":{"0":"post-626532","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-enables","8":"category-high-quality","9":"category-technology"},"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/posts\/626532","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/comments?post=626532"}],"version-history":[{"count":0,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/posts\/626532\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/media\/626533"}],"wp:attachment":[{"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/media?parent=626532"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/categories?post=626532"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/newsycanuse.com\/index.php\/wp-json\/wp\/v2\/tags?post=626532"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}